Beautiful Virgin Islands

Saturday, Dec 20, 2025

100 people held more than 20 years in ‘institutions’

100 people held more than 20 years in ‘institutions’

One hundred people with learning disabilities and autism in England have been held in specialist hospitals for at least 20 years, the BBC has learned.

The finding was made during an investigation into the case of an autistic man detained since 2001.

Tony Hickmott's parents are fighting to get him housed in the community near them.

BBC News overturned a court order which had prevented reporting of the case.

Mr Hickmott's case is being heard at the Court of Protection - which makes decisions on financial or welfare matters for people who "lack mental capacity".

Senior Judge Carolyn Hilder has described "egregious" delays and "glacial" progress in finding him the right care package which would enable him to live in the community. He lives in a secure Assessment and Treatment Unit (ATU) - designed to be a short-term safe space used in a crisis. It is a two-hours' drive from his family.

This week, Judge Hilder lifted the anonymity order on Mr Hickmott's case - ruling it was in the public interest to let details be reported. She said he had been "detained for so long" partly down to a "lack of resources".

Like many young autistic people with a learning disability, Mr Hickmott struggled as he grew into an adult. In 2001, he was sectioned under the Mental Health Act. He is now 44.

Pam and Roy Hickmott - their son Tony is pictured at the top of article


"Nine months we were told he'd be away, until they found him a suitable place in the Brighton area," says his father, 78-year-old Roy.

Mr Hickmott was finally declared "fit for discharge" by psychiatrists in 2013, but he is still waiting for the authorities to find him a suitable home with the right level of care for his needs.

"If he'd murdered someone he'd be out now. He's lost his family, he's lost his home," says his mother Pam, who is 81. "He's just a shadow of the human he used to be. There are so many families like us - crying and screaming. We are our children's voices."

His Assessment and Treatment Unit care is paid for by the NHS - but the cost of housing and caring for him in the community with trained staff would fall to Pam and Roy's local authority, Brighton and Hove, and local NHS commissioners. That process has been bogged down in delays and wrangles. Pam believes the delays are over funding.

"We've got judges telling them to get on with it but they're still not doing it, they're still fighting over the money."

Finding suitable housing with skilled support staff can be a complicated process. But Mr Hickmott's family argue it should have been put in place a long time ago.

Pam and Roy's home is full of photographs showing their son in happier times. Birthday parties, smiling with his two sisters, holidaying with his mum and dad. The couple used to visit him twice a week - although, now they are that bit older, they just travel up on a Thursday.

"I've gone through three cars traveling to and fro," says Roy. "Sometimes Pam and I travel back and pull in at the side of the road and we just cry."

Six evenings a week - at 17:00 - they speak to their son on the phone.

"He describes all the rooms in our house. His memory of his home is all he's got," says Pam.

During past visits to the ATU, Pam says they drew pictures of a house with a garden by the sea. She would tell her son he would be home soon.

"He doesn't believe us any more. He doesn't believe he's coming home."

Pam and Roy Hickmott's family photos


In addition to the 100 patients, including Mr Hickmott, who have been held for more than 20 years - there are currently nearly 2,000 other people with learning difficulties and/or autism detained in specialist hospitals across England.

In 2015, the Government promised "homes not hospitals" when it launched its Transforming Care programme in the wake of the abuse and neglect scandal uncovered by the BBC at Winterbourne View specialist hospital near Bristol. But data shows the programme has had minimal impact.

Ministers pledged to reduce the number of patients in such hospital settings by 35% by March 2020, with the aim of people being back in their communities with tailored support packages. But, by March last year, there were only 300 fewer patients detained - a reduction of just 13%.

The 35% target has now slipped to 2023/24.

It was further BBC News analysis of this official data which revealed that of 350 people detained for more than a decade, 100 of them have been in hospital settings for more than two decades.

Numbers of people with learning disabilities and/or autism in inpatient units in England:

*  March 2015 - 2,395

March 2020 - 2,095

October 2021 - 2,070

Source: NHS Digital

Last month, crossbench peer Baroness Hollins - who has been reviewing long-term segregated care - told the House of Lords it was time to "end the scandals" and give people back their lives. But she also spoke of another man - Mr W - held largely in solitary confinement for 20 years but who, for the past three years, had lived around the corner from his parents.

"Despite still recovering from the trauma, he is now happy," she said.

This is what Roy and Pam Hickmott want.

The author of the Serious Case Review into what happened at Winterbourne View, Dr Margaret Flynn told us the "institutions" detaining people like Tony should not exist.

"It's appalling. These people are not criminals. They are stuck, just as people used to be stuck in long-stay institutions."

She says there is so much testimony from people with a learning disability and/or autism - and their families - about "harmful experiences" when they are removed from "all that is familiar to them".

Judge Hilder - who has allowed Tony Hickmott's case to be reported following an application by the BBC and Sky News - has ordered the authorities involved in his care to work together to move him back to Brighton by May.

In a statement, Brighton and Hove Council said: "Tony has extremely complex needs. We've tried on a number of occasions to find a sustainable solution nearer to Brighton… these were not successful." The council says it is working with the NHS and Mr Hickmott's family to find other options.

NHS England in the South East says it is continuing to work with partner organisations - and Roy and Pam Hickmott - to ensure "appropriate care and support is in place".

Newsletter

Related Articles

Beautiful Virgin Islands
0:00
0:00
Close
UK Financial Conduct Authority Opens Formal Investigation into WH Smith After Accounting Errors
UK Issues Final Ultimatum to Roman Abramovich Over £2.5bn Chelsea Sale Funds for Ukraine
Rare Pink Fog Sweeps Across Parts of the UK as Met Office Warns of Poor Visibility
UK Police Pledge ‘More Assertive’ Enforcement to Tackle Antisemitism at Protests
UK Police Warn They Will Arrest Protesters Chanting ‘Globalise the Intifada’
Trump Files $10 Billion Defamation Lawsuit Against BBC as Broadcaster Pledges Legal Defence
UK Says U.S. Tech Deal Talks Still Active Despite Washington’s Suspension of Prosperity Pact
UK Mortgage Rules to Give Greater Flexibility to Borrowers With Irregular Incomes
UK Treasury Moves to Position Britain as Leading Global Hub for Crypto Firms
U.S. Freezes £31 Billion Tech Prosperity Deal With Britain Amid Trade Dispute
Prince Harry and Meghan’s Potential UK Return Gains New Momentum Amid Security Review and Royal Dialogue
Zelensky Opens High-Stakes Peace Talks in Berlin with Trump Envoy and European Leaders
Historical Reflections on Press Freedom Emerge Amid Debate Over Trump’s Media Policies
UK Boosts Protection for Jewish Communities After Sydney Hanukkah Attack
UK Government Declines to Comment After ICC Prosecutor Alleges Britain Threatened to Defund Court Over Israel Arrest Warrant
Apple Shutters All Retail Stores in the United Kingdom Under New National COVID-19 Lockdown
US–UK Technology Partnership Strains as Key Trade Disagreements Emerge
UK Police Confirm No Further Action Over Allegation That Andrew Asked Bodyguard to Investigate Virginia Giuffre
Giuffre Family Expresses Deep Disappointment as UK Police Decline New Inquiry Into Andrew Mountbatten-Windsor Claims
Transatlantic Trade Ambitions Hit a Snag as UK–US Deal Faces Emerging Challenges
Ex-ICC Prosecutor Alleges UK Threatened to Withdraw Funding Over Netanyahu Arrest Warrant Bid
UK Disciplinary Tribunal Clears Carter-Ruck Lawyer of Misconduct in OneCoin Case
‘Pink Ladies’ Emerge as Prominent Face of UK Anti-Immigration Protests
Nigel Farage Says Reform UK Has Become Britain’s Largest Party as Labour Membership Falls Sharply
Google DeepMind and UK Government Launch First Automated AI Lab to Accelerate Scientific Discovery
UK Economy Falters Ahead of Budget as Growth Contracts and Confidence Wanes
Australia Approves Increased Foreign Stake in Strategic Defence Shipbuilder
Former UK Prime Minister Boris Johnson proclaims, “For Ukraine, surrendering their land would be a nightmare.”
Microsoft Challenges £2.1 Billion UK Cloud Licensing Lawsuit at Competition Tribunal
Fake Doctor in Uttar Pradesh Accused of Killing Woman After Performing YouTube-Based Surgery
Hackers Are Hiding Malware in Open-Source Tools and IDE Extensions
Traveling to USA? Homeland Security moving toward requiring foreign travelers to share social media history
UK Officials Push Back at Trump Saying European Leaders ‘Talk Too Much’ About Ukraine
UK Warns of Escalating Cyber Assault Linked to Putin’s State-Backed Operations
UK Consumer Spending Falters in November as Households Hold Back Ahead of Budget
UK Orders Fresh Review of Prince Harry’s Security Status After Formal Request
U.S. Authorises Nvidia to Sell H200 AI Chips to China Under Security Controls
Trump in Direct Assault: European Leaders Are Weak, Immigration a Disaster. Russia Is Strong and Big — and Will Win
"App recommendation" or disguised advertisement? ChatGPT Premium users are furious
"The Great Filtering": Australia Blocks Hundreds of Thousands of Minors From Social Networks
Mark Zuckerberg Pulls Back From Metaverse After $70 Billion Loss as Meta Shifts Priorities to AI
Nvidia CEO Says U.S. Data-Center Builds Take Years while China ‘Builds a Hospital in a Weekend’
Indian Airports in Turmoil as IndiGo Cancels Over a Thousand Flights, Stranding Thousands
Hollywood Industry on Edge as Netflix Secures Near-$60 Bln Loan for Warner Bros Takeover
Drugs and Assassinations: The Connection Between the Italian Mafia and Football Ultras
Hollywood megadeal: Netflix acquires Warner Bros. Discovery for 83 billion dollars
The Disregard for a Europe ‘in Danger of Erasure,’ the Shift Toward Russia: Trump’s Strategic Policy Document
Two and a Half Weeks After the Major Outage: A Cloudflare Malfunction Brings Down Multiple Sites
UK data-regulator demands urgent clarity on racial bias in police facial-recognition systems
Labour Uses Biscuits to Explain UK Debt — MPs Lean Into Social Media to Reach New Audiences
×